← All secretariatsA secretariat is the entity that does the operational work of an All-Party Parliamentary Group: drafts agendas, briefs MPs, sends out invitations, books rooms, writes reports. When the secretariat is a lobby firm or PR firm, the APPG is a paid channel for the firm’s clients to access MPs. The MPs officer the group, the firm supplies the staff and the policy line, the firm’s clients (listed under Funders below) pay for the privilege.
APPG Secretariat · Lobby firm dossier
Motor Neurone Disease Association
https://www.mndassociation.org/ ↗APPGs operated
1
lobby groups inside Westminster
MP officers
4
across all groups run
Registered funders
0
paying entries on the APPG register
APPGs operated · 1
- All-Party Parliamentary Group on Motor Neurone DiseaseSubject Group
To increase awareness and understanding of motor neurone disease (MND) amongst parliamentarians, to provide a forum for discussion of the challenges facing people living with and affected by MND and to campaign for better access to high quality services for people affected by MND..
Officered by: Ian Byrne (Chair & Registered Contact), Michael Payne (Vice Chair), Olly Glover (Vice Chair), Aphra Brandreth (Vice Chair)