← All secretariatsA secretariat is the entity that does the operational work of an All-Party Parliamentary Group: drafts agendas, briefs MPs, sends out invitations, books rooms, writes reports. When the secretariat is a lobby firm or PR firm, the APPG is a paid channel for the firm’s clients to access MPs. The MPs officer the group, the firm supplies the staff and the policy line, the firm’s clients (listed under Funders below) pay for the privilege.
APPG Secretariat · Lobby firm dossier
Haemochromatosis UK
https://www.haemochromatosis.org.uk ↗APPGs operated
1
lobby groups inside Westminster
MP officers
3
across all groups run
Registered funders
1
paying entries on the APPG register
APPGs operated · 1
- All-Party Parliamentary Group on Genetic HaemochromatosisSubject Group
The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems.
Officered by: Sir John Hayes (Chair & Registered Contact), James Wild (Vice Chair), Torcuil Crichton (Officer), Baroness Evans of Bowes Park (Officer)Paid by: Haemochromatosis UK (£3,001-4,500)