← All secretariatsA secretariat is the entity that does the operational work of an All-Party Parliamentary Group: drafts agendas, briefs MPs, sends out invitations, books rooms, writes reports. When the secretariat is a lobby firm or PR firm, the APPG is a paid channel for the firm’s clients to access MPs. The MPs officer the group, the firm supplies the staff and the policy line, the firm’s clients (listed under Funders below) pay for the privilege.
APPG Secretariat · Lobby firm dossier
Genetic Alliance UK
https://www.geneticalliance.org.uk/ ↗APPGs operated
1
lobby groups inside Westminster
MP officers
4
across all groups run
Registered funders
1
paying entries on the APPG register
APPGs operated · 1
- All-Party Parliamentary Group on Genetic, Rare and Undiagnosed ConditionsSubject Group
To increase awareness in parliament of genetic, rare and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.
Officered by: Peter Dowd (Chair & Registered Contact), Baroness Neville-Jones (Vice Chair), Alison Hume (Officer), Lord Turnberg (Officer)Paid by: Genetic Alliance UK (£7,501-9,000)